Laura Hovind, Lahra Tillman, and Leo Oppenheimer from TruthCures shared their journey from being Lyme disease patients to activists, and now plaintiffs in a lawsuit. This legal venture aims to confront the misdiagnosis issue rampant in Lyme disease testing. The trio provides a comprehensive insight into their lawsuit, painting a broader picture of the challenges faced by many suffering from Lyme disease.

From Patients to Activists: The Origin Story

Lahra Tillman was the first to share her ordeal, recounting her tick bite incident back in 1993, which set her on a nearly three-decade-long struggle with Lyme disease. It wasn't until around 2015-2016 that she began connecting with other activists like Laura Hovind to fight the misinformation surrounding Lyme disease. Leo Oppenheimer, an attorney hailing from Kansas City, Missouri, shared his personal and professional experience with Lyme disease. The narrative of his journey provides a fascinating blend of legal insight and personal adversity, setting the stage for their collective legal venture.

Harnessing the Legal System: The Lyme Lawsuit

The transition to utilizing legal tools came from a place of desperation and a need for action. The lack of accurate Lyme disease testing led them to the lawsuit that Leo is spearheading. Their discussion revealed how the legal system could potentially play a crucial role in rectifying the diagnostic deficiencies that have plagued the Lyme disease community for years.

The FDA Meeting: Unveiling Truths

In summer 2021, a pivotal meeting with the FDA was arranged. The trio had previously discovered flaws in the regulatory pathway for diagnostics, which led them to present these findings to the FDA. Despite acknowledging their claims, the FDA's subsequent silence prompted them to take further legal action.

Challenges of Lyme Disease Testing: The Lawsuit's Focus

Their lawsuit centers around deceptive advertising by Lyme disease test manufacturers. The primary claim is that these tests, marketed to the general populace, are inaccurate and fail to diagnose Lyme disease correctly. The discussion delves into the intricacies of the lawsuit, the hopes for its outcome, and the potential ripple effect it could have on the Lyme disease testing market.

The Impact and Future Aspirations

The lawsuit has already garnered public attention, fulfilling one of their primary goals of raising awareness about the flawed Lyme testing landscape. The trio also discussed their broader aspirations for the lawsuit - that it would lead to better, more accurate Lyme disease diagnostics.

Through an engaging discussion, Laura Hovind, Lahra Tillman, and Leo Oppenheimer provide a thorough understanding of their ongoing legal battle. They shed light on the core issues that have hindered the correct diagnosis and treatment of Lyme disease for countless individuals. The trio's dedication towards bringing about a change in the Lyme disease testing paradigm is a story of determination, hope, and an unwavering quest for justice.

In this special episode, we are joined by Alayna Bellquist, an environmental advocate and Lyme disease survivor. Alayna opens up about her diagnosis, treatment, and the life-altering moments that shaped her journey. She also discusses her upcoming book and provides unique insights into how Lyme disease has become a catalyst for meaningful change in her life.

• Introduction
  • Welcome Alayna Bellquist and guest co-host Michelle McKeon
• Early Life and Background
  • Alayna's upbringing in the Pacific Northwest
  • Lack of awareness about tick diseases in her early life
• Career and Environmental Advocacy
  • Alayna’s work in marine science and advocacy
  • Her role as a bridge between industry and Congress
• Diagnosis and The Wall
  • The tick bite that changed everything
  • The initial challenges in diagnosis and her treatment plan
• Dark Times and Recovery
  • Struggles during the treatment
  • The role of family support during recovery
• Life Lessons from Lyme Disease
  • How Lyme has been a transformational experience for Alayna
  • The importance of slowing down in life
• A Comprehensive Approach to Healing
  • Alayna's multi-faceted approach to recovery
  • Her thoughts on resiliency and environmental stewardship
• Alayna’s Upcoming Book
  • Why she decided to write a book
  • The central theme and message of her book
• Final Questions & Conclusion
  • Michelle’s special last question
  • Plans for a future episode focusing on Alayna's book

In this episode of the Tick Boot Camp Podcast, we're joined by Milena Pastore and our special co-host, Georgia Wood. Milena discusses her Lyme disease journey, from growing up in Colorado to her diagnosis and ongoing recovery. We explore the challenges of Lyme disease, both physical and mental, and delve into the impact it has on individuals and their families.

Background

• Milena grew up in a small town in Colorado, experiencing a rather carefree upbringing. She later moved to New York City before coming back to Colorado in 2016.

Early Health Challenges

• Milena recalls facing various health issues from a young age, including exposure to ticks, but Lyme was not suspected until later in life.

The Turn for the Worse

• After years of battling unexplained fatigue, anxiety, and depression, Milena started to suspect Lyme Disease as the culprit.

Diagnosis and Treatment

• After multiple tests and doctors, Milena was finally diagnosed with Lyme disease. She discusses her experience with antibiotic treatment and its after-effects.

Emotional Toll and Mental Health

• Milena shares her struggles with emotional and mental health due to Lyme, highlighting the importance of having a support system.

Navigating Treatments

• From antibiotics to holistic treatments, Milena provides insights into what worked for her, including the benefits of sauna therapy.

Healing Through Communication

• Milena discusses how she found healing through sharing her journey and offering guided meditations to friends and family, thus realizing her calling as a communicator and healer.

Soul Tribe Yoga Collective

• Milena recently launched Soul Tribe Yoga Collective, a virtual yoga community.
• Soul Tribe Yoga Collective is a safe and supportive space built on pillars of authenticity, inclusivity, compassion, and non-judgment, where students can be genuinely seen and heard.
• Soul Tribe strives to bring healing to the body, mind, and spirit without causing exhaustion, flareups, or setbacks.

Introduction

• Today’s special guest: Lacey Anderson, a Registered Nurse (RN) with a specialty in Sexually Transmitted Infections and mental health from Alberta, Canada.
• The focus of today's episode: Lacey's personal and professional journey dealing with Lyme disease, Bartonella, Ehrlichia, and Toxoplasmosis.
• Why you don't want to miss this: Lacey's rich clinical experience coupled with her personal journey through chronic illnesses offers a nuanced perspective on mental and physical health.

The Healthcare System: A Double-Edged Sword

• Personal challenges faced within the Canadian healthcare system.
• Comparisons between U.S. and Canadian healthcare models, particularly in treating chronic conditions.

Nervous System Health

• Deep dive into how the sympathetic and parasympathetic nervous systems are affected by chronic conditions like Lyme.
• Suggestions for potential treatment protocols.

Navigating the Healthcare System

• Importance of clear communication with healthcare professionals.
• Lacey's tips, especially valuable given her experience as a nurse.

Medical Frameworks: Blessing or Curse?

• An exploration of medical frameworks, both as a patient and healthcare provider.
• How these frameworks can be restrictive when dealing with complex illnesses.

Holistic Health: A New Approach

• Lacey's holistic approach to treating her conditions.
• The intersection of physical, emotional, and spiritual elements in healthcare.

Conditions and Treatment Regimens

• Current treatments Lacey is undergoing for her diagnoses.
• The power of herbal protocols and lifestyle changes.

Sensation, Pain, and Chronic Illness

• Lacey's experiences with internal organ sensation changes and "thunderclap headaches."
• Why understanding the unique types of pain can help in treatment.

Transmission of Lyme and Co-Infections

• Existing research and gaps in understanding Lyme transmission, particularly in sexual transmission.
• Lacey's expert insights into this controversial topic.

Closing Remarks

• How you can follow Lacey's ongoing journey and glean more insights into chronic illness management.

In this episode of Tick Boot CampPodcast, we sit down with Tom Davies from Liverpool, England, who shares his incredible journey of battling Lyme disease. From initial symptoms to self-diagnosis, navigating the medical system, and finding relief, Tom provides invaluable insights for those struggling with tick-borne illnesses.

Meet Tom Davies

• Tom Davies hails from Liverpool, England.
• Co-host Kahlil Fuller joins for this special episode.

Liverpool: More Than Just The Beatles

• Tom discusses the virtues of living in Liverpool, touching on its famous landmarks, sports culture, and more.

Tom’s Life Before Illness

• A look into Tom's professional life and the stressors that might have impacted his health.

Struggling with the Healthcare System

• The journey of dealing with various doctors and navigating through an often unhelpful medical system.

Symptoms and Diagnosis

• Tom's experiences with varied and terrifying symptoms that led him to suspect Lyme disease.

Emotional Impact and Support System

• Tom talks about the emotional toll the disease has taken on him and how his aunt and others have been instrumental in his support system.

Finding the Right Doctor

• Tom’s trip to Dublin to consult with Dr. Lambert, who finally provided effective treatment options.

Treatment Journey

• Tom's six-month treatment course, which involved multiple rounds of antibiotics and its impact.

Social Life and Impact

• How Lyme disease affected his social interactions and relationships with friends and family.

Tom’s Advice for Others

• Trust your gut, communicate openly, and focus on educating yourself about your condition.

Future Plans

• Tom discusses returning to his passion for music and looking forward to a Lyme-free life.

Closing Thoughts: Tom’s story serves as an inspiration for others navigating the complex world of Lyme disease. His courage and perseverance provide hope for those on a similar journey. Thank you for tuning into this episode of Tick Boot Camp Podcast. Make sure to subscribe so you don't miss any upcoming episodes.

• Introduction
  • Special guest introduction: TJ Nelson from Las Vegas, Nevada
  • Spotlight: Ashley Marba special guest co-host
  • Background: TJ's Utah roots, his worldwide travels, and his ongoing Lyme journey
• The Early Years: High School to College
  • TJ's challenges during his high school to college transition
  • Personal tragedies: His parents’ separation and the loss of his brother
  • Mental health struggles and the initial steps taken
• Diving into International Waters
  • TJ's leap into international entrepreneurship: From Thailand to Chile
  • Introduction to DominateDepression.com: TJ’s initiative to battle mental health issues
  • A brief reflection on the beauty of other cultures and their community-driven approach
• Lyme Disease, Bartonella, Rocky Mountain Spotted Fever, and Mycoplasma
  • The Bartonella problem: Unraveling the mysterious stomach scratch
  • The turning point in San Diego: TJ's appointment with a pivotal doctor
  • Challenges with Western medication: A patient's perspective
• Deep Dive into Alternative Treatments
  • TJ's take on ozone therapy and its benefits
  • The intense experiences with hyperthermia and its impact on Lyme symptoms
  • The power and potential of stem cells in treating Lyme
  • Experimenting with peptides: thymosin alpha, thymosin beta, LL-37, BPC-157, and more.
• The Psychedelics Conversation
  • An open discussion about the growing interest in psychedelics for treating chronic ailments
  • How altering brain states can pave the way for new, healing neural pathways
• Other Avenues Explored
  • The Cowden Protocol: A herbal approach to Lyme
  • Bee Venom Therapy (BVT): The buzz around its effectiveness for TJ
  • Dietary shifts: From carnivore diets to other alternative food plans
• Walk the Lyme: A Closer Look at TJ’s Book
  • The inspiration behind Walking the Lyme and its core message
  • Aiming to provide hope, validation, and a guiding light to those battling Lyme
  • TJ's business side: Balancing health while scaling ventures
• Mental Wellbeing and Future Plans
  • Emphasis on parasympathetic activities: Neurofeedback, meditation, and yoga
  • TJ’s goals: A sneak peek into his aspirations and the road to achieving them
• Conclusion
  • Ashley’s heartwarming reflection on TJ’s resilience and growth journey
  • Final remarks from the host and looking ahead to future episodes

Introduction:

• Host Rich Johannesen and special guest co-host Emma Pikoulas introduce the episode and the long-awaited interview with Nina Yagual.

Nina's Background:

• Nina shares the unexpected tale of her birth in New York and growing up in Central Florida.
• Discussion about her childhood in Florida, the environment, and memories.

The Onset of Lyme:

• Nina recalls being 24 when symptoms first appeared.
• The incident with a tick bite and the immediate aftermath.
• Nina's early medication journey: experiences with Doxycycline and initial treatments.

Diagnosis & Validation:

• The struggles of not having health insurance and the subsequent journey to get diagnosed.
• Nina's experience with an herbal protocol.
• The importance and significance of a formal diagnosis and the emotional relief it brought.

Embracing a New Lifestyle:

• Nina's transformative journey: recognizing triggers, managing stress, and the significance of diet.
• An in-depth look into her new custom herbal blends tailored to her needs.
• The essence of decluttering and creating a calming environment at home.

Acceptance & Relationships:

• Nina's approach to establishing boundaries and managing social interactions.
• Embracing freedom from societal constraints and focusing on personal well-being.
• The power of emotions and how Nina used them as tools in her healing journey.

Serving the Lyme Community:

• Nina's ongoing outreach on platforms like Instagram.
• The significance of a safe, organized space, especially for those with chronic illness.
• Nina's previous interactions with Lyme patients before her own diagnosis.

Conclusion:

• The hosts reflect on the episode and express gratitude for Nina's insights.
• Emphasizing the importance of early detection and treatment of Lyme.

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Note: The show notes provide a summarized overview of the podcast episode. For a complete understanding and more in-depth discussions, please tune in!

Introduction:

• Bonnie Crater, a renowned name in the Lyme disease community.
• Received numerous inquiries from listeners eager to hear her story.
• Nicole Bell special guest co-hosting with Rich Johannesen

Background & Personal Story:

• Bonnie's early life in Portola Valley, California.
• Journey into microbiology and winning the science prize in high school.
• Experiences at the University of Richmond and experiments in labs.
• Entry into the tech business; starting a hat company in Princeton.
• Venture into the computer industry and running a computer store.

The Lyme Connection:

• Introduction to the Bay Area Lyme Foundation and the Center for Lyme Action, both founded by Bonnie.
• Recognizing the gap in knowledge about Lyme disease.

Bay Area Lyme Foundation:

• The discovery of high rates of Lyme disease-carrying ticks in California.
• The initial projects and efforts to educate people about Lyme disease in California.
• Mission of Bay Area Lyme Foundation.
• Partnering with government organizations like NIST to understand the hurdles in Lyme disease research.
• The need for better diagnostics for early and accurate Lyme detection.

Center for Lyme Action:

• The initiative to attract new researchers to the field.
• Bonnie's efforts to increase federal funding for Lyme disease research.
• Meeting with Congresswoman Barbara Lee and the need for a lobbyist.
• Formation of the Center for Lyme Action and its first event in 2019.
• The Kay Hagan Tick Act Its journey, renaming, and the speed of its enactment.

Impact of Advocacy:

• The significance of continuous funding for researchers in Lyme disease.
• Role of private foundations in creating a pool of exceptional researchers.
• Future projections: Improving diagnostics first, followed by therapeutics.

Conclusion:

• Gratitude for connections made in the Lyme community.
• The complexity of understanding neurological disease.
• Acknowledgment of the good science and good work being done in the field.
• Appreciation for the network and shared experiences.

End Note: Stay tuned for more episodes of our Tick Boot Camp Podcast. If you found this episode helpful, please share it with friends, family, and on social media. Remember to subscribe for more insights into Lyme disease and other crucial health topics.

Join us and special guest co-host Ali Moresco in a riveting episode as we sit down with Olivia and Steve Abrams, the brains behind the innovative Tick Mitt. With tick-borne illnesses on the rise, the Abrams share their personal experiences and insights into the world of ticks and Lyme disease and introduce us to a game-changing product.

Highlights:

• Introduction to Olivia and Steve Abrams from Tick Mitt
• Tick Mitt's success in just four months
• Co-host Ali Moresco joins the conversation
• A deep dive into Steve's childhood and experience with ticks
• The changing landscape of Lyme disease awareness
• Olivia's personal journey with Lyme disease
• The importance of Lyme disease diagnosis and treatment
• Introduction to Tick Mitt - A solution to tick worries
• The science behind Tick Mitt
• Benefits and usage of Tick Mitt
• Tick Mitt's affordable price point
• Olivia and Steve's ongoing health after Lyme disease
• Olivia's academic journey and her drive to be a social entrepreneur

Mentioned in this Episode:

• Tick Mitt's feature on ABC's The View and Good Morning America
• Wendy Phillips from the Lyme Disease Foundation
• Dr. Holly Tuten at the University of Illinois
• Lorraine Johnson and Dorothy Leland from My Lyme Data
• Recommendations by LLMD Dr. Cameron

Episode Wrap-up: The Tick Boot Camp podcast wishes to thank Olivia and Steve Abrams for their insightful discussion on the challenges and nuances of Lyme disease. Their invention, the Tick Mitt, promises to revolutionize how we approach tick prevention. Don't forget to check out their website and incorporate the Tick Mitt into your daily tick-check routine! Stay safe and tick-free!

In this episode of our Tick Boot Camp Podcast, we welcome back Dr. Diane Mueller, a leading voice in Lyme disease treatment, and co-host Michelle McKeon, a specialist in tick-borne infections and environmental toxins.

Introduction: Dr. Diane Mueller makes a much-anticipated return to our community to discuss updates in her practice. Joining her is Michelle McKeon, who specializes in Lyme disease co-infections and environmental toxins.

Treatment Approach: Dr. Mueller shares her four-phase method for dealing with complex tick-borne and environmental illness scenarios, focusing on understanding the body's needs before implementing treatment.

Lifestyle Adjustment: Dr. Mueller explains the importance of lifestyle changes such as the incorporation of daily movement and the benefits of managing stress.

Mental Health Aspect: We delve into the realm of mental health, discussing the crucial role of asking the right questions to promote healing.

Exploring Peptides: Dr. Mueller shares her insights into the potential benefits of peptides, specifically KPV and BPC-157, for helping manage Lyme disease symptoms and promoting healing.

Managing Persister Cells: Learn about persister cells, the dormant form of Lyme disease, and the strategies Dr. Mueller uses to combat them, such as pulsation therapy and autologous immune enhancement therapy.

Dr. Mueller's Book: Dr. Mueller has released a new edition of her book, "It's Not in Your Mind". She shares some of the key differences and additional topics covered in the new edition.

My Libido Doc: Dr. Mueller introduces her new practice, "My Libido Doc", a platform designed to address relationship and sexual health issues often affected by Lyme disease.

Mold and Mycotoxins: The discussion delves into the dangers of mold and mycotoxins, testing, and potential treatment options.

Supporting Mitochondrial Health: Finally, Dr. Mueller provides tips on how to support mitochondrial health, which is crucial for overall wellness, especially when dealing with chronic illness.

Links:

• Dr. Mueller Feature on Tick Boot Camp
• Dr. Mueller's Lyme Disease Practice - My Lyme Doc
• Dr. Mueller's Book - It's Not In Your Mind: Solutions and Strategies for Lyme Disease, Mold Illness, and Chronic Infections
• My Libido Doc
• Dr. Mueller's Website
• Michelle McKeon - The Lyme Specialist