Episode 401: Lyme Empowerment - an interview with Jennifer Russel
10 months ago
Join us for a compelling episode of the Tick Boot Camp Podcast featuring Jennifer Russell, CEO and founder of the Illinois Lyme Association. Co-hosted by Jenny Buttaccio, this episode explores Jennifer's journey from rural living to becoming a major force in the fight against Lyme disease.
Introduction
- Welcoming Jennifer Russell and her influential role in the Lyme disease community.
- Introduction of special co-host Jenny Buttaccio.
Jennifer's Early Life and First Encounter with Lyme
- Jennifer discusses her upbringing in Alo, Illinois.
- Early experiences with ticks and the initial lack of Lyme disease awareness.
The Onset of Lyme Disease in Jennifer's Family
- The story of Jennifer's daughter’s mysterious symptoms and the struggle for a diagnosis.
- How Lyme disease became a pivotal part of Jennifer's life.
Advocacy and Legislative Efforts
- Jennifer’s proactive approach to raising Lyme disease awareness.
- The challenges and triumphs in the legislative process for Lyme disease recognition.
Founding the Illinois Lyme Association
- The inception and goals of the Illinois Lyme Association.
- Jennifer’s role in community building and education.
Accomplishments
- Lauryn Russell Lyme Disease Prevention and Protection Law: Grants doctors immunity to treat Lyme disease outside CDC guidelines without risking their license.
- Insurance Coverage Law (2019): Ensured coverage for Lyme disease in state-regulated insurance plans and Medicaid.
- Lyme Task Force: appointed to Illinois Department of Public Health’s Lyme Disease Task Force.
Future Aspirations for Lyme Disease Advocacy
- Jennifer's vision for the growth and impact of the Illinois Lyme Association.
- Plans for expanding Lyme disease awareness through hiring writers and volunteers.
Conclusion
- Key insights and takeaways from Jennifer's journey.
- The importance of advocacy, community support, and perseverance in combating Lyme disease.