Tick Boot Camp

Episode 418: Lyme in Poland - an interview with Giulio Lacobellis

In this captivating episode of the Tick Boot Camp Podcast, we journey to Warsaw, Poland, to uncover the personal and profound story of Giulio Lacobellis and his battle with Lyme disease. Our host, joined by special co-host Emma Pikoulas, explores the profound impact that Lyme disease has had on Giulio's life and career.

Guest Profile:

  • Name: Giulio Lacobellis
  • Age: 38
  • Location: Warsaw, Poland
  • Background: Former entrepreneur engaged in European Union-funded educational projects; current IT professional.

Key Points Discussed:

  • Life Before Lyme:
    • Giulio shares his dynamic life as an entrepreneur, fostering educational opportunities across Europe.
    • The transition from a bustling career to battling a debilitating illness.
  • The Onset of Lyme Disease:
    • At age 36, Giulio's life took a dramatic turn as he began experiencing severe, unexplained pain and paralysis.
    • Misdiagnoses and the struggle to find answers in a non-English speaking healthcare system.
  • Diagnosis and Treatment:
    • A seasoned rheumatologist's insight leads to a Lyme disease diagnosis through blood tests.
    • Giulio discusses his initial treatments, including antibiotics and ongoing pain management.
  • Adjusting to a New Normal:
    • The significant lifestyle changes Giulio has made to manage his condition, including quitting alcohol and incorporating yoga.
    • The psychological toll of chronic illness and strategies for coping.
  • Advice for Others:
    • Giulio provides heartfelt advice to others battling Lyme disease, emphasizing the importance of self-acceptance and proactive health management.

Special Thanks: We extend our gratitude to Giulio for sharing his deeply personal experience and to Emma Pikoulas for her contributions to the conversation as a special guest co-host. Their perspectives enrich our community's understanding of Lyme disease and its impact on lives around the globe.

Listen and Share: Join us for this enlightening discussion on the Tick Boot Camp Podcast. Don’t forget to subscribe, share, and leave us a review to help spread awareness and support for the Lyme disease community.

Episode 417: Vital Plan - an interview with Doctor Bill Rawls

In this special crossover episode between Tick Boot Camp Podcast and the Vital Plan Network, we welcome back Dr. Bill Rawls, a trusted mentor to our Lyme Disease community. With over 50,000 downloads per episode, our listeners represent a broad spectrum of those impacted by Lyme disease and other tick-borne illnesses. Dr. Rawls provides insight into the complex relationship between microbes and the immune system, drawing from his vast knowledge and research.

  1. Microbial Strategy: Bacteria, viruses, protozoa, and yeast can all turn human tissues into their food supply. Dr. Rawls emphasizes the importance of understanding how microbes infiltrate and weaken the body's barriers.
  2. Lyme & Co-Infections: Lyme disease is associated with a range of chronic conditions like MS, dementia, Parkinson's disease, and even cancer. Co-infections such as Bartonella, Babesia, Rocky Mountain Spotted Fever, and Ehrlichia can exacerbate the symptoms.
  3. Barriers to Disease:
    • Skin: Our first defense in keeping pathogens out.
    • Immune System: The internal army fighting off infections.
    • Cells: Designed to protect and regenerate themselves.
    • Gut Microbiome: The critical ecosystem maintaining balance and immunity.
  4. Antibiotics vs. Herbs: Antibiotics are effective against fast-growing bacteria, but Lyme grows slowly (approximately every 12 hours). Herbs are often more effective against slow-growing bacteria like Borrelia (Lyme). Doctor Rawls has created his science-backed herbal Restore Kit to treat chronic Lyme disease.
  5. Tick Vigilance: Dr. Rawls emphasizes tick vigilance, noting that ticks inject bacteria directly into the bloodstream through numbed skin, making detection essential. He stresses checking oneself thoroughly after outdoor activities.
  6. Adaptogenic Support & Herbal Protocols: Dr. Rawls discusses how adaptogens like mushrooms and other herbs help regulate the body's response to stress and promote healing, especially when combined in comprehensive protocols like the Restore Kit. Doctor Rawls has created his HPA Balance herbal adaptogen blend in addition to his Adaptogen Recovery herbal blend included in his Restore Kit.
  7. Chlorella & Detoxification: Chlorella is highlighted for its ability to bind and purge toxins from the body. Sweating through exercise or sauna therapy enhances blood flow and aids in flushing metabolic waste. Doctor Rawls has created his Pure Chlorella product to assist with binding and detoxification.
  8. Mitochondrial Support: The role of cellular health in Lyme recovery is vital. Supporting mitochondria with herbal supplements, like the Mitochondrial Support in the Restore Kit, reduces stress signals from cells, calming the body's fight-or-flight response.

Episode 416: Stinging Lyme - an interview with Kerri Ciullo

In this inspiring episode of the Tick Boot Camp Podcast, we're joined by Kerri Ciullo, a 29-year-old Lyme warrior from rural New Jersey. Kerri opens up about her extensive battle with Lyme disease, highlighting her current success with Bee Venom Therapy (BVT) as a pivotal component of her treatment.

  • Early Signs and Misdiagnoses: Kerri shares her early symptoms, such as fatigue, headaches, and digestive issues, which began in childhood. She expresses the challenges of being misdiagnosed and overlooked by numerous healthcare providers.
  • Diagnosis and Treatment Journey: After being misdiagnosed by over 20 specialists, Kerri received a diagnosis of late-stage Lyme, Bartonella, and Babesia at age 19. She walks us through her long treatment history, from antibiotics to intravenous therapies, leading up to her current focus on Bee Venom Therapy through The Heal Hive.
  • Bee Venom Therapy Focus: Kerri provides an in-depth look at her BVT regimen, explaining how this treatment has brought significant improvements to her health. She discusses the process, the science behind BVT, and why it has been more effective for her compared to previous treatments.
  • Living with Chronic Illness: Kerri touches on the personal adaptations she's had to make, including running her own Etsy business from home to accommodate her health needs. She also discusses managing multiple autoimmune conditions that have been activated by Lyme disease.
  • Advocacy and Advice: As an advocate for Lyme disease awareness, Kerri offers crucial advice on prevention strategies, such as performing regular tick checks and choosing non-toxic repellents. She stresses the importance of self-advocacy and listening to one’s body.
  • Future Plans and Hopes: Despite ongoing challenges, Kerri is optimistic about her future. She plans to resume her college education and continues to dedicate herself to a comprehensive self-care and treatment plan.

Episode 415: Autoimmune Neurology - an interview with Doctor Elena Frid

In this enlightening episode of the Tick Boot Camp Podcast, Dr. Elena Frid, a board-certified neurologist and neurophysiologist specializing in infection-induced autoimmune disorders, shares her expertise on the neurological and psychological aspects of Lyme disease, offering insights into why these are often the most misunderstood and challenging elements of the disease.

What You'll Learn:

  • Dr. Frid's journey into specializing in infection-induced autoimmune disorders, neurology, and Lyme disease.
  • The significant role of the neurological system in Lyme disease and why it's frequently misunderstood.
  • The importance of an integrative approach to diagnosing and treating Lyme disease.
  • Dr. Frid’s strategies for managing complex Lyme disease cases that exhibit neurological symptoms.
  • Insights into the potential reversibility of autoimmune processes in Lyme disease patients.

Key Moments:

  • Introduction to Dr. Elena Frid and the focus of today's interview.
  • Dr. Frid discusses her educational background and what led her to focus on Lyme disease.
  • Exploring the neurological impacts of Lyme disease and why they are critical yet challenging to treat.
  • Discussion on the importance of an accurate diagnosis and the tools Dr. Frid uses in her practice.
  • How autoimmune responses can be triggered by Lyme disease and the potential for reversing these effects.

Closing Thoughts: Dr. Frid emphasizes the importance of a comprehensive approach to treating Lyme disease, considering both the infectious and autoimmune components of the disease. Her insights are invaluable for anyone struggling with or treating Lyme disease, especially those dealing with its complex neurological manifestations.

Thank you for joining us for this episode of the Tick Boot Camp Podcast. Stay tuned for more expert discussions aimed at helping you navigate the challenges of Lyme disease.

Episode 414: Rise of Lyme - an interview with Adam Finnegan

In this compelling episode of the Tick Boot Camp Podcast, we are honored to welcome Adam W. Finnegan, a researcher, writer, and Lyme disease advocate. Adam shares his deeply personal journey through the complexities of Lyme disease, from his early symptoms to his profound insights into the disease's connection with biological warfare and immune tolerance.

Dive deep into the discussion as Adam also explores his groundbreaking book The Sleeper Agent, revealing the intricate world of biological stealth weapons and the historical research of Erich Traub. Join us as we explore the transformational power of resilience and knowledge in battling Lyme disease.

  • Introduction to Adam W. Finnegan
    • Background and current work
    • Discussion of his book, "The Sleeper Agent"
  • Adam's Early Life and Initial Health Challenges
    • Early symptoms and misdiagnoses
    • The tick bite in 2016 that changed everything
  • Diagnosing Lyme Disease
    • The struggle to find answers and the eventual Lyme diagnosis
    • The role of the IGeneX test in confirming Lyme disease and other infections
  • The Impact of Lyme on Adam's Life
    • Changes in personal and professional life
    • How Lyme disease shifted his career path and personal philosophy
  • "The Sleeper Agent": A Deeper Dive
    • The concept of biological warfare and immune tolerance
    • Insights into the life and work of Erich Traub
  • Living with Chronic Lyme Disease
    • Strategies for managing symptoms and improving health
    • Importance of diet, exercise, and spirituality
  • Advice for Those Battling Lyme and Tick-Borne Diseases
    • Encouragement and strategies for coping with the disease
    • Adam's message of hope and resilience
  • Closing Thoughts
    • Adam’s outlook on the future of Lyme disease research and advocacy
    • How listeners can access his book and further information
  • Farewell to Adam and Closing Remarks

Episode 413: Lyme Liberation - an interview with Daniel Wagner

In this inspiring episode of the Tick Boot Camp Podcast, we sit down with Daniel Wagner from Cincinnati, Ohio, to delve into his challenging yet enlightening journey with Lyme disease. At 33 years old, Daniel shares his experiences from a high-flying career in the corporate world to battling severe symptoms that left him bedridden. Our special guest co-host, Alexander Brook Clark, helps navigate Daniel’s story from his active life before Lyme through to his ongoing recovery process.

  • Early Life and Background:
    • Born in California and lived in various states due to his father's military career.
    • Daniel’s adventurous childhood and the influence of his parents' story.
  • Initial Symptoms and Misdiagnosis:
    • Onset of severe symptoms like heart issues, nerve pain, and dysautonomia in July 2021.
    • Journey through 18 different doctors and misdiagnoses, including potential MS, POTS, IST, and MVPS.
  • Diagnosis and Treatment:
  • Living with Lyme:
    • Insights into daily challenges and the adjustments necessary to manage chronic Lyme.
    • The importance of diet, stress management, and self-advocacy in the healing process.
  • Advice for Others:
    • Tips for those currently fighting Lyme and other tick-borne diseases.
    • Preventative measures for those looking to protect their families from tick diseases.

Episode 412: Collaborative Care - an interview with Leanne Dalton

In this deeply inspiring episode of the Tick Boot Camp podcast, we sit down with Leanne Dalton and her daughter, Claire Dalton. Leanne, a 65-year-old entrepreneur from Utah, shares her harrowing yet uplifting journey battling Lyme disease. Diagnosed later in life after years of misdiagnoses and suffering, her story is enriched by Claire's insights and shared experiences, highlighting not just the challenges of living with Lyme disease but also their profound spiritual journey and holistic approach to healing. Join us as Leanne and Claire discuss the trials, treatments, and triumphs they have experienced on their path to recovery.

  • Introduction
    • Introduction of the episode, guests Leanne and Claire Dalton.
    • Brief overview of Leanne’s background, her struggle with Lyme disease, and Claire’s role in her journey.
  • Early Symptoms and Challenges
    • Leanne shares her initial experiences with Lyme-like symptoms following a vaccination at age 12.
    • Discussion of the progression of her symptoms and the impact on her schooling and early life, with Claire adding her perspective on witnessing her mother’s health challenges.
  • Navigating Misdiagnoses
    • Leanne recounts the long and frustrating journey to a correct diagnosis, supported by Claire’s observations and their family's experiences with the healthcare system.
    • Exploration of the various misdiagnoses and treatments Leanne underwent over the years.
  • Diagnosis and Comprehensive Treatment
    • The moment of diagnosis: How it came about and Leanne’s initial reactions, with Claire discussing her simultaneous diagnosis and treatment experiences.
    • An in-depth look at the various treatments they pursued, from conventional medicine to alternative therapies such as IV ozone, red light therapy, and more.
  • The Role of Spirituality and Personal Growth
    • Leanne and Claire discuss how spirituality played a crucial role in their recovery.
    • Insights into how they use their faith and personal research to manage their health.
  • Advocacy and Advice
    • Leanne and Claire’s efforts in Lyme disease advocacy and community support.
    • Practical advice for those currently battling Lyme and other tick-borne diseases, shared from both generational perspectives.
  • Preventive Measures and Environmental Awareness
    • Tips on preventing Lyme disease and promoting a healthy, toxin-free lifestyle.
    • Discussion on the importance of understanding environmental impacts on health, with contributions from both Leanne and Claire.
  • Closing Thoughts
    • Reflections on their journey and how it has transformed their lives and outlooks.
    • Encouragement and empowering words for listeners dealing with similar challenges.
  • Outro
    • Summary of key points discussed.
    • Thanks to Leanne and Claire Dalton for sharing their stories.
    • Reminder for listeners to subscribe and follow Tick Boot Camp for more inspiring stories.

Resources Mentioned:

Episode 411: Calm Brain - an interview with Dr. Roseann Capanna-Hodge

In this compelling episode of the Tick Boot Camp Podcast, we delve deep into the intricacies of healing from Lyme disease and related conditions with the esteemed Dr. Roseann Capanna-Hodge. A pioneer in addressing the neurological and psychological impacts of chronic diseases, Dr. Roseann shares invaluable insights into navigating the complex path toward healing.

Understanding Healing on Its Own Terms

Dr. Roseann emphasizes the individual nature of healing, challenging the notion that recovery must adhere to a predefined timeline. This discussion opens up a crucial conversation about the importance of prioritizing health and wellness over societal expectations, especially for those battling chronic illnesses.

Grieving and Growth: The Emotional Journey

Highlighting the emotional rollercoaster families face upon diagnosis, Dr. Roseann discusses the grief process, the acceptance of a new normal, and ultimately, the creation of a path forward. Her personal experiences and professional expertise shed light on the necessity of acknowledging and working through these emotions as part of the healing process.

The Critical Need for a Holistic Approach

A key focus of the episode is the shortcomings of the current medical system in adequately addressing Lyme disease, PANS, and PANDAS. Dr. Roseann advocates for a comprehensive, five-pronged approach to treatment that includes addressing infections and toxins, supporting the immune system, focusing on mental health, providing behavioral and parenting support, and regulating the nervous system.

Confronting Misinformation and Misdiagnosis

Dr. Roseann and the hosts discuss the pervasive misinformation about Lyme and tick-borne illnesses, including the critical issue of misdiagnosis by medical professionals. The conversation underscores the need for greater awareness and education among both the public and healthcare providers.

The Integral Role of Nervous System Regulation

The discussion turns to the significance of nervous system regulation in the healing journey. Dr. Roseann explains how chronic sympathetic dominance can hinder recovery by impacting immune response, hormonal balance, and overall well-being, making the regulation of the nervous system a cornerstone of effective treatment.

Overcoming Challenges in the Medical Community

Addressing the issue of medical gaslighting, Dr. Roseann shares her insights into the dual challenges faced in both the physical and mental health sectors. She stresses the importance of advocating for proper treatment and recognition of Lyme disease and associated conditions as complex medical issues requiring specialized care.

Episode Insights

This episode is a must-listen for anyone touched by Lyme disease, tick-borne illnesses, or chronic conditions, offering hope, understanding, and actionable advice for navigating the healing journey.

Rich Johannesen and special guest co-host Liza Blas focus this episode on the insights and expertise of Dr. Roseann Capanna-Hodge, whose work in the field of Lyme disease and chronic illness continues to inspire and support countless individuals and families on their path to recovery.

For further information, resources, and support, join the Tick Boot Camp community and explore additional episodes that foster understanding, advocacy, and healing. Catch this and other episodes for a deeper dive into the lives and recovery stories of those battling Lyme disease and tick-borne illnesses.

Episode 410: Lyme in Norway - an interview with Paola Giometti

Join us in this compelling episode of the Tick Boot Camp Podcast as we explore the journey of Paola Giometti, a Brazil-born biologist now residing in Tromsø, Norway, who has been navigating the challenges of Lyme disease. Alongside our host, Matt Sabatello, and special guest co-host, Max Noir, we delve into Paola’s personal and professional life, her battle with Lyme disease, and her insights on overcoming the struggles associated with this tick-borne illness.

  • Introduction to Paola Giometti: Learn about Paola's background as a biologist specializing in cancer research, her early life in Brazil, and her move to Norway.
  • Early Symptoms and Misdiagnoses: Paola shares her experience with the onset of Lyme disease at 11 years old, the chronic fatigue, muscle weakness, and the series of misdiagnoses that followed.
  • The Lyme Diagnosis Journey: Discover the long and arduous path to receiving a proper Lyme disease diagnosis at the age of 39, including the challenges faced within the medical community in Norway and Brazil.
  • Treatment and Recovery: Paola discusses her treatment regimen, including the use of combination antibiotics and supplements, and the impact on her daily life and symptoms.
  • Life with Lyme: Insights into how Lyme disease has affected Paola's professional aspirations, social life, and her dream of being an athlete.
  • Advice for Lyme Warriors: Paola offers her advice to others battling Lyme disease and other tick-borne illnesses, emphasizing the importance of seeking a specialist and advocating for one's health.
  • Paola's Message of Hope: Despite the challenges, Paola shares a message of resilience and hope for others suffering from Lyme disease.

Don’t forget to subscribe to the Tick Boot Camp Podcast on your favorite podcast platform and leave us a review. Your feedback helps us grow our community and improve our impact.

Episode 409: Armur Health - an interview with Alexandra Brook-Clark

Welcome to a deeply inspiring episode of the Tick Boot Camp Podcast, where we sit down with Alexandra Brook-Clark, a resilient Lyme disease warrior, who has transformed her battle with Lyme into a mission of helping others. Residing in Marblehead, Massachusetts, Alexandra shares her incredible journey from blissful days in Brooklyn, New York, to facing the stark realities of Lyme disease and co-infections. Now, at 39, Alexandra's story is not just about struggle; it's about overcoming, learning, and thriving. Emma Pikoulas joins Matt Sabatello as a special guest co-host for this powerful interview.

Alexandra's Background:

  • Name: Alexandra Brook-Clark
  • Age: 39
  • Location: Marblehead, Massachusetts
  • Professional Background: Transitioned from a decade in the fashion industry to working in Workers Compensation Risk Management for her family's company. Alexandra has also embraced a role as a Lyme disease advocate, organically offering guidance and support to others affected by Lyme and tick-borne diseases.

Pre-Lyme Life: Alexandra reminisces about her life before Lyme—full of social engagements, work success, and joy with her husband Patrick, son August, and their dog Zeus in Brooklyn, NY. Her life, seemingly perfect, was abruptly interrupted by Lyme disease.

Lyme Disease Onset: At 36, Alexandra's world turned upside down. Post hip surgery and at the cusp of the COVID-19 pandemic, she began experiencing unexplainable and debilitating symptoms. Despite numerous misdiagnoses and a journey through the complexities of the healthcare system, her relentless pursuit for answers led her to self-order an IGENIX test, which confirmed Lyme alongside multiple co-infections.

Diagnosis and Treatment:

  • Age at Diagnosis: 37
  • Diagnostic Path: Negative results on the Western blot, a positive breakthrough with IGENIX.
  • Treatment Journey: Began with antibiotics and herbs under Dr. Casey Kelley's care, transitioning to a holistic and herbal approach with Dr. Linda Tao at the Morrison Center in New York, augmented by innovative therapies such as ozone IV, glutathione, and more.

Life Post-Diagnosis: Alexandra shares the profound changes Lyme disease brought to her life, from PTSD and fears of the outdoors to a newfound appreciation for life's simplicity and the importance of treating her body with kindness. Despite the ongoing challenges, including a battle with mold intolerance, Alexandra stands at 95% of her pre-Lyme self, actively working and enjoying a revitalized social life.

Healing Strategies: Emphasizing the importance of the brain-body connection, Alexandra credits her recovery to retraining her brain, alongside an arsenal of therapies including cold plunging, sauna sessions, and rigorous detoxification routines.

Advice to Others: For those battling Lyme, Alexandra offers hope and assurance of healing. Her preventive advice underscores the importance of vigilance against ticks, advocating for proactive measures like regular tick checks and the use of protective sprays.

Armur Health: Alexandra runs Armur, providing access to community support, expert advice, and a wealth of information to empower individuals on their journey to recovery from Lyme and other chronic infections.

Conclusion: Alexandra Brook-Clark's journey is a testament to the power of resilience, the importance of self-advocacy in health, and the transformative impact of a supportive community. Her story not only sheds light on the complexities of Lyme disease but also inspires hope and action in the face of adversity.

Closing Remarks: Thank you for tuning in to this compelling episode of the Tick Boot Camp Podcast with Alexandra Brook-Clark. Her courage, insights, and advice offer invaluable lessons on navigating Lyme disease with hope and determination. Join us next time as we continue to share stories of triumph and transformation in the battle against tick-borne illnesses.

The goal of the Tick Boot Camp Podcast is to help people liberate themselves and others from suffering caused by Lyme disease through validation, community building, belief that healing is possible, and modeling success. Listen to our Tick Boot Camp podcast using all major podcast streaming services such as Apple Podcasts, Spotify, and Google Podcasts. Our podcast is also integrated with smart home devices, such as Amazon Alexa and Apple TV. Ask your device to "play the Tick Boot Camp Podcast!"